Hello, folks! So sorry I failed to post an update after telling you that Kristina was going in for an endoscopy.
So the word from that procedure was that she does not have GVH in her digestive system, which is great news. She is still dealing with some fatigue and lack of appetite, but she is scheduled to have her lines pulled (that's the hookup for the old IV input) day after tomorrow.
She got a reminder recently of her fragile state: she was invited to a small afternoon barbecue and found out, at the very last minute, that somebody was bringing a child who had recently been given a live vaccine, which is something Kristina cannot be around. So at the very last minute she found out she couldn't go. This kind of thing is really tough for her, as you can imagine.
Otherwise, she still has to fight with the insurance world on many occasions. She fell through some kind of crack in the bureaucracy and has been getting a lot of bills she shouldn't be getting, and this may be starting to affect her credit rating. She is also trying to look over her mother, who now lives in Seattle.
She continues to express how grateful and amazed she is for all the support she's getting, and she continues to request all those healing vibes be sent her way. A few financial donations (just in time to write them off before April 15!) wouldn't hurt, either!
We're working on getting some more photos on here, and I'm trying to get a video someone shot at the Bone Marrow Bash fundraiser posted on YouTube. So stay tuned.
Otherwise, take a moment on Saturday to contemplate this: that day is Day #150 since the transplant! Amazing how time flies.
Thanks for checking in.
Paul
