I think the upcoming transition is bringing some other things into focus for her: the need for money, logistical issues with the caregiver, the need for weekend caregiving volunteers, and so on. There’s also the added element that, due to her taking three steroids to combat GVH, she is now diabetic and needs insulin.
So she is by no means out of the woods, but at least she will soon be out of the hospital. There will be daily visits to the hospital for monitoring and treatment for several months – and she’ll be taking about 15 medications daily! – but she will be home.
The next big thing is a bone marrow biopsy in about nine days. Today is Day 19 since transplant, and on Day 28 she will have a biopsy (tissue sampling) from her bone marrow to see if the MDS has been eradicated. If it has been, then the disease is gone and she recovers from all this and gets on with her life. If it hasn’t been, there will be more chemo and another transplant.
Otherwise:
- Blood numbers are all up again, and some are back within normal
- I posted some links to media clips about her under a new category, personal information. It's on the left.
- I sent out an EVite to about 100 more people for the Dec. 19 fundraiser. The flyer on this page is all the info you need on that.
- Please consider volunteering for a 24-hour weekend shift as a caregiver. Email Kristin for more info.
- For visiting her at her apartment, all the same restrictions still apply, and during the day she may well be at the hospital. So call her in advance to make sure she’s there – but she would LOVE to have visitors, and of course it’s a lot easier than the hospital.
- Please consider making a small donation to her fund. There are many, many bills to pay.
1 comment:
Hi Kristina,
Wow, a lot has happened since we last spoke. I will call you. I am willing to take a shift on a weekend. You are doing great. There are bumps in the road, but they will pass.
Cindy Johnson
Post a Comment